How do we accept a life-changing diagnosis for our child? And how do we manage the fear, grief, and anxiety that accompany it? Here's how to take life-changing news one step at a time.
How do we handle a life-changing diagnosis for our child without falling apart? A concerned mother asked for support in our Facebook group:
"My sweet seven-year-old son just got two very life-altering diagnoses. I hate that he's going to have pain and struggle in his life. That some options for his life are off the table because of his diagnoses. He's just starting his life and already has so much stacked against him. My brain won't stop thinking; my fingers won't stop reaching for more information. How do you cope with this as a mother?"
Amy tells this parent that she's right: this is a lot to handle, and she's not wrong to think so.
Parents dealing with chronically ill children need to give themselves permission to feel all their feelings. Taking time for themselves is an important part of staying mentally healthy for the long haul.
Real-life support is also crucial—and that can also include emails, phone calls, and online chats with parents you may never have met, but who are dealing with similar struggles. You don't have to pretend things are better or easier than they are when you are talking to fellow travelers who know just what you're going through.
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